Update # 5

Jan & Feb 2017: After the New Year everyone got back into routine, back to work and school and I had my own routine, waking up early and getting myself breakfast - I was still very swollen from the steroids.
Had stockings on every day to help with the swelling on the legs, that helped me walk better. Then when the stockings came off Natalie and Mama would massage my legs, which helped move the fluid away from my feet and lower legs and made them feel more comfortable.
We made use of the mobility scooter and went to the beach for walks along the prom, we also went out for lunch at least once a week. It was good to get out of the house and enjoy the fresh air. Over the weeks and months I have had so many visits and been really grateful there have always been flowers and cards and chocolates adorning the house.
For in January one of my best friends Sandi came over from America. It was so lovely to see her. Her suitcases were full of food that she knew I loved from America. She didn't come for a vacation for her, she worked and did what ever she could to help. On the weekend it was her birthday, but she still insisted on cooking for the whole family. It was delicious everyone loved the dinner and desserts. We celebrated her birthday with her and she was really surprised that she had gifts. Even the nieces and nephews made cards and bought her presents, she in one week become part of the family. Every night she took over the role of masseuse not only was it a comfort for me but we caught up and talked into the late night.
Natalie, Sandi and I spent a day seeing the local sights it was a beautiful day. We went  to Sandbanks and across the ferry to Corfe Castle. We were going to go to Tyneham but the tanks were shooting so the village was closed. We went to Lulworth and I got the mobility scooter out and we went all the way to the bay. After Lulworth we went to Durdle Daw and then Poundbury. We took a tour of the lovely village of Poundbury and ended at a lovely new restaurant The Duchess of Cornwall and had a delicious three course meal that we couldn't finish. It was a lovely week but so difficult to say goodbye. It brings tears to my eyes as I think of it.

February was very much the same as January but in the last two weeks my energy levels were lower, so it was more difficult to get out.
The 27th February was the last time I was able to get up the stairs to my bedroom, I was so worn out by the time I got there I could hardly get into bed. Natalie and I got quite emotional as we realised things were starting to change, quicker than we thought. I remembered that March was the sixth month after being diagnosed and they said I might only have six months left.
So we decided it was time for me to be downstairs and ask for a hospital bed.
The district nurse came the next day and she ordered a bed and it arrived that evening. What amazing service.